Transplant Living: Organ Donation and Transplantation Information for Patients


About Us Sponsors Editorial Board Patient Profiles Minorities Support Groups State Listing News & Information Calendar of Events Add an Event Patient Resources Online Store Publications MELD/PELD Calculator LAS Calculator CPRA Calculator Member Directory Policies Bylaws Public Comment Links Glossary		Support Groups State Listing A C D F G I M N O P R T V W All For support group listing additions or changes, please contact the events editor. Alabama USA Regional Transplant Center Support Group 2451 Fillingim Street Mobile, Alabama 36617 Sharrie Cranford, LGSW, MSW (251) 471-7391 877-800-8000 Heart/Lung/Liver Support Group University of Alabama at Birmingham Birmingham, AL Stan Smith 205-655-3151 UAB Heart and Lung Transplant Support Group University of Alabama at Birmingham P.O. Box 531274 Birmingham, AL 35253 Tom Horton 205-967-7350 Alaska Alaska Transplant Recipient Resource Group Anchorage, Alaska Family Services Coordinator 907- 562-LIFE (5433) Arizona Lung Transplant Support Group St. Joseph’s Hospital and Medical Center 350 W. Thomas Road Phoenix, Arizona 85013 Kathy Lam, MSW, LCSW (602) 406-7009 Heart/Lung Transplant Support Groups Tucson and Phoenix Groups University Medical Center 1501 N. Campbell Avenue Tucson, Arizona 85724 Jane Wenk, MSW 800-524-5927 Kidney Transplant Support Group University Medical Center 1501 N. Campbell Avenue Tucson, Arizona 85724 Sandra Thornton, MSW (520) 694-6628 The New Heart Society 201 W. Coolidge Street Phoenix, Arizona 85013 Patti Cook, President tnhs1@netzero.net www.thenewheart.org California Liver Transplant Support Group Stanford Hospital and Clinics 300 Pasteur Drive, Stanford, CA 94305 Jenny Kwak, LCSW Kim Averett, MSW Miriam Beinin, LCSW 650-498-5831 Bay Area Association of Kidney Patients M PO Box 2332 Menlo Park, CA 94026-2332 www.BAAKP.org bay.area.kidney@gmail.com 650-323-2225 Heart Transplant Support Group Stanford Hospital and Clinics 300 Pasteur Drive Stanford, CA 94305 Evonne David, LCSW Paula Wolfson, MSW 650-721-2319 A Gift of Heart - Organ Transplant and Donor Support Group Mission Viejo, CA Orange, CA Gary Foxen 714-637-0412 Kidney and Pancreas Transplant Support Group UC Irvine Medical Center 101 The City Drive Orange, CA 92868 Angela Wu, LCSW 714-456-8342 Heart Transplant Support Group Sharp Memorial Hospital 7901 Frost Street San Diego, CA 92123 858-939-3811 Caregiver Solid Organ Transplant Support Group Stanford Hospital and Clinics 300 Pasteur Drive Stanford, CA 94305 Evonne David, LCSW Lesley Seeger, MSW 650-736-1059 Heart and Lung Transplant Support Group UCSF Medical Center San Francisco, CA Nikki Galin, LCSW 415-353-8818 Weekly Transplant Support Group Cedars-Sinai Medical Center 8700 Beverly Blvd., Room 2802 Los Angeles, CA 90048 John Pappas, LCSW 310-423-6850 Pre and Post Organ Transplant Support Group ADTAS, Alliance for Donation and Transplantation Awareness and Support 384 West Orange Show Road San Bernardino CA 92408 John Mitas or Jennifer Sutt 951-689-2822 or 909-795-7411 A.FDTAS@gmail.com www.freewebs.com/adtas Liver Transplant Support Group UCSF Medical Center San Francisco, CA Sherry Laemmermann, ACSW 415-353-1040 Inland Empire Transplant Support Group 2738 South Cucamonga Ave. Ontario, CA 91761-6910 Donald Goss 909-923-7114 Liver Transplant Support Group UCLA Medical Center 10833 LeConte Ave. Los Angeles, CA 90024-1729 Peggy Stewart 310-825-5921 Santa Rosa Memorial Kidney Transplant Group Northern CA Kidney Transplant Center P.O. Box 522 Santa Rosa, CA 95402 Nancy Swick 707-525-5297 UCLA Heart and Lung Transplant Program Support Groups Linda Ventura 310-825-0749 Coachella Valley Hepatitis C, Liver Disease and Transplant Support Group Portola Community Center 45480 Portola Ave Palm Desert, CA 92260 Richard Darling, DDS fair@dc.rr.com Transplant Recipients International Organization (TRIO) San Francisco Bay Area Chapter P.O. Box 2804 Cupertino, CA 95016-0154 408-238-3077 Transplant Recipients International Organization (TRIO) The City Chapter 2358 Park Boulevard Oakland, CA 94606 510-834-0436 Transplant Recipients International Organization (TRIO) Ventura County West Valley Chapter 2562 Covent Garden Court Thousand Oaks, CA 91362 805-492-9810 www.trioventurala.org UCSD Medical Center Kidney Transplant Support Group Chris Frederici, LCSW 619-574-8612 UCSD Medical Center Liver Transplant Support Group Michele Morrison, LCSW 619-574-8612 UCSD Medical Center Heart/Lung Transplant Support Group UCSD Medical Center Lung Support Group UCSD Medical Center Heart/Lung Transplant Caregivers Support Group Karen Matthews, LCSW (619) 543-7777 Sacramento Area Liver Transplant Support Group Ann Linnekens 916-791-1697 Sacramento Area Renal and Liver Support Group UC Davis Transplant Program 1625 Stockton Blvd Sacramento, CA 95816-7053 800-821-9912 Sacramento Renal Transplant Support Group Sacramento Medical Foundation Blood Center http://members.aol.com/DeniseOka/Dhp1.html Transplants for Life -- Reading area Ken Smith 610-777-7000 York Area Transplant Support Group Beth Trout-Landen 717-851-2052 Second Chance Heart Support Group Richard Harbourt 609-799-1498 Multi-Organ Support Team (MOST) Co-Chairs: Susan Pincus and Ed Perkins 215-963-0482, ext. 117 Colorado Liver Transplant Support Group for University of Colorado Hospital Patients Gersten Library 4200 E. 9th Avenue Denver, CO Jenny Sanderson, LSW 303-372-7623 Connecticut Transplant Recipients International Organization (TRIO) New England Chapter (serving CT, ME, MA, NH, RI and VT) 44 Ellison Road Newton, MA 02459 (617) 266-9559 Delaware Kidney Transplant Patient Education and Support Group Christiana Care Health System Christiana Hospital, Newark, DE Eileen Edge, LSW, MSW 302-623-3866 866-682-6792 (toll-free) Hearts from Heaven Transplant Support Group 1207 Carr Rd. Wilmington, DE 19809 (302) 798-5847 District of Columbia (D.C.) Transplant Support Group Howard University Hospital 2041 Georgia Avenue N.W. Washington, D.C. 20060 Dr. John Robinson 202 865-1443 Transplant Recipients International Organization (TRIO) 1000 Sixteenth Street, NW, Suite 602 Washington, DC 20036-5705, (202) 293-0980 800-TRIO-386 (outside metro area) TRIO@primenet.com Georgetown Transplant Patient Support Group (kidney, pancreas, heart) Georgetown University Hospital 3800 Reservoir Road, NW Washington, DC 20007 (202) 784-3700 New Beginnings Heart, Liver and Kidney Transplant Support Group Howard University Hospital Washington, DC 20060 Glenn Ferrell (202) 832-3826 Washington Heart Support Group Washington Hospital Center, Room 1208 110 Irving Street, NW Washington, DC 20010 (202) 877-3220 Florida Tallahassee Hepatitis Support Group TMH Diabetes Clinic 1981 Capital Circle Northeast Tallahassee, FL 850-443-8029 Susan.cason@tmh.org figment@nettally.com Transplant Recipients International Organization (TRIO) Southwest Chapter P.O. Box 7888 North Port, FL 34287 Bette Luksha-Gammell (941)423-2553 TRIOFLA@comcast.net Organ Transplant Recipients of SW FL, Inc. 2727 Winkler Avenue Fort Myers, FL 33901 (877) 674-2689 www.organsupport.org Brevard County Organ Transplant Support Group Leo A. Paradis (Chairman) 1041 Bernice Rd. Rockledge, FL 32955-2202 321-698-8884 BCOTSG@cfl.rr.com The Kids Organ Donor Education Program P.O. Box 621446 Oviedo, FL 32762 donoreducation@aol.com Second Wind Lung Transplant Association, Inc. 300 South Duncan Avenue, Suite 227 Clearwater, FL 33755-6457 P.O. Box 1915 Largo, FL 33779 (888) 855-9463 (727) 442-0892 (Clearwater Local) heering@2ndwind.org http://2ndwind.org One Breath at a Time Patricia Bullock 4216 3rd Avenue West Palmetto, FL 34221-9517 (941) 722-5665 agbear333@verizon.net Tallahassee Kidney Support Group 1609 Physicians Drive Tallahassee, Fl 32308 850-878-1171 nephrology4@earthlink.net Transplant Recipients International Organization (TRIO) Northeast Florida Chapter P.O. Box 60562 Jacksonville, FL 32236-0562 (904) 858-3370 www.trionefl.org jt@trionefl.org Georgia Hepatitis C Support Group Columbus , GA HEPATITIS_C_SUP_COLUMBUS_GA@YAHOO.COM TripleHeart, Inc. E.G. "Kel" Kelley and Joanne Kelley 2991 Concord Way Douglasville, GA 30135-1769 (770) 920-2324 www.tripleheart.org kelkelley@tripleheart.org Illinois Kidney/Pancreas Support Group Memorial Medical Center 701 N. 1st St Springfield, IL 62781 Holly Heinz, LSW, MSW 217-788-3441 Transplant Support Group of Northern Illinois Northern Illinois Medical Center McHenry, Illinois 815-477-9528 Have a Heart Foundation Bolingbrook, IL 747 E Boughton Road, Suite 328 Sandra Nothegger 630-985-4635 www.thehaveaheartfoundation.org Organ Transplant Support, Inc. Chuck Feltes, President PO Box 471 Naperville, IL 60566-0471 630-527-8640 organtransplantsupport@gmail.com The Children's Heart Foundation 1755 Park Street, Suite 260 Naperville, IL 60563 (630) 428-1298 www.childrensheart.com information@childrensheartfoundation.org Have A Real Heart Foundation Transplant Support Group 3227 Everglade Woodridge, IL 60517 Roger Baker (630) 896-0229 rxbaker@aol.com Transplant Support Group American Transplant Association 47 W Polk Street, Suite 100-140 Chicago, IL www.americantransplant.org 800-494-4527 Rush University 725 West Harrison, Ste. 437 Chicago, IL Mike Levick 312-563-2111 University of Chicago 5841 S. Maryland Chicago, IL Rina Murao 773-834-2003 University of Illinois Hospital 1740 West Taylor Chicago, IL Mamie Kutame 312-996-9157 New Beginnings Quad City Area Transplant Support Group East Moline/Quad Cities Martin Schmidt 309-792-1485 Lung and Heart/Lung Transplant Support Group Loyola University Medical Center 2160 S First Ave Maywood, IL Mary McGillicuddy 708.216.3634 Indiana CHALTS Liver Support Group Indiana Medical Center Indianapolis, Indiana (317) 846-1579 jackcarmel@aol.com Iowa Transplant Support Group Great River Medical Center, Oak Room Burlington, Iowa Samantha “Sam” Johnson 319-758-9665 Life from Life Des Moines Arlene Field 515-964-3363 New Beginnings Quad City Area Transplant Support Group East Moline/Quad Cities Martin Schmidt 309-792-1485 Anxiously Awaiting University of Iowa Hospitals & Clinics, Soc. Clinic Iowa City Yuk Sum Chung 319-353-8799 Transplant Support Group VA Medical Center Carol Winetroub 319-338-0581 x6596 New Hearts Omaha/Council Bluffs Shirley Kramer 402-339-8946 Maryland American Lung Association of Maryland Inc. 1840 York Road, Suite M Timonium, Maryland 21093 (410) 560-2120 Transplant Recipients International Organization (TRIO) Maryland Eastern Shore Chapter P.O. Box 43 Easton, MD 21601 410-820-1361 Living With Hepatitis/Before and After Transplant Support Group Frederick County Hepatitis C Clinic 350 Montevue Avenue, Entrance "B" Frederick, MD 21703 kubotalady@aol.com Massachusetts Renal/Pancreas Transplant Support Group (Pre and Post Transplant) UMass Memorial Medical Center Lazare Research Building, Conference Room 203 Worcester, MA Lisa Glasheen, MSW, LICSW 508-334-7613 Liver Transplantation Support Group UMass Memorial Medical Center Worcester, MA Doris Tripp-MacPherson, LICSW 508-856-8646 Liver Transplant Group Beth Israel Deaconess Medical Center 185 Pilgrim Road, Farr 10 Solarium Boston, MA 02215 Noelle Dimitri (617) 632-9815 Youth for Organ Donation Awareness (YODA) c/o Harvard College Cambridge, MA 02138 www.yodaonline.org The Partnership for Organ Donation 2 Oliver Street Boston, MA 02109-4901 617-482-5746 info@organ-donation.org Transplant Recipients International Organization (TRIO) New England Chapter (serving CT, ME, MA, NH, RI and VT) 44 Ellison Road Newton, MA 02459 617-224-1270 Dare to be Alive 230 North Main Street South Yarmouth, MA 02664 Deanna Arnold 508-398-5473 Michigan BlueWater Support Group Port Huron Hospital Mike Lewis 810-364-4436 Escanaba Transplant Support Group Carol Plouff 906-786-4358 Heart Transplant Support Group Henry Ford Hospital Detroit, MI Ginger St. John, MSW 313-916-2724 Heart LVAD Support Group Henry Ford Hospital Detroit, MI Ginger St. John, MSW 313-916-2724 Kidney/Pancreas Support Group Henry Ford Hospital Detroit, MI Patrick Williams, MSW 313-916-1290 Liver Support Group Henry Ford Hospital Detroit, MI Maria Munoz, MSW 313-916-1352 Lung Support Group Henry Ford Hospital Detroit, MI Ginger St. John, MSW 313-916-2724 Iron Mountain Transplant Support Group Evelyn Juneau (906) 774-7501 Lakeshore Transplant Support Group Hackley Hospital 1700 Clinton St Muskegon, MI 49442 CJ Raugh, President (231) 740-5901 LOTS Lenawee Transplant Support Lenawee County John and Lorna Brinkerhuff (517) 264-2068 LOTTS-Living Organ Transplant and Tissue Support Group Kalamazoo Jan Getz 269-349-6630 Mid-Michigan Transplant Support Group Saginaw Mary Catherine Siers 989-792-1334 Mid-Michigan Transplant Support Group Mid Michigan Medical Center Clare, MI Terri Maynard (989) 430-4174 Organ Transplant Awareness Group Alpena, MI Jerome Smigelski 989-354-3342 Organ Transplants of Southwest Michigan Gary Rouse 269-423-6450 Second Chance Warren, MI Jacquie Oliai 616-774-7671 St. John Transplant Support Group Detrioit, MI Jennifer Bruns 313-343-3047 TIME Owosso, MI Buddy Strob 989-743-4863 Transplant Support Group Jackson, MI Cathy McAllister 517-783-7320 Transplant Support Group Of Northern Michigan Gaylord, MI Bev Cherwinski 989-983-4188 Heart Support Group University of Michigan Medical Center Ann Arbor, MI Ruth Halben 734-763-9788 Lung Support Group University of Michigan Medical Center Ann Arbor, MI Lizbeth Warner 734-615-5334 Liver Support Group University of Michigan Medical Center Ann Arbor, MI Lynda Asher 734-668-0334 Minnesota Fairview-University Heart Transplant Support Group Fairview-University Medical Center MMC 181 420 Delaware Street SE Minneapolis, Minnesota 55455 Marget Schmidtke, LICSW 612-273-5796 Fairview-University Lung Transplant Support Group Fairview-University Medical Center MMC 181 420 Delaware Street SE Minneapolis, Minnesota 55455 Marget Schmidtke, LICSW 612-273-5796 Mississippi Jackson Transplant Support Group James Laird 601-933-1000 1-800-690-8878 Second Chance Transplant Support Group of Meridian Linda Allan 601-656-8674 Robert Everett 601-483-3800 Second Chance Support Group of North Mississippi Carl and Mary Vinson 662-566-8841 Mike and Beth Wildman 662-287-1668 New Beginning Transplant Awareness/Support Group Johnny and Lisa Reid 601-268-1759 Larry and Joyce Norris 601-545-2193 Missouri Transplant Institute Support Group Research Medical Center 2316 E. Meyer Blvd. Kansas City, Missouri 64132 Kristen Derks 816-822-8257 kristen.derks@hcamidwest.com Heart Transplant Support Group Barnes- Jewish Hospital St. Louis, MO 63110 Jennifer Manolis, LCSW 314-362-3980 Lung Transplant Support Group Barnes-Jewish Hospital St. Louis, MO 63110 Rebecca Bathon, LCSW 314-362-6127 Kidney Transplant Support Group Barnes-Jewish Hospital St. Louis, MO 63110 Karen Politsch, LCSW Shannon Givens, LCSW 314-362-5577 Liver Transplant Support Group Barnes-Jewish Hospital St. Louis, MO 63110 Diane Chan, LCSW 314-362-1956 Second Wind Lung Transplant Association, Inc. St. Louis Chapter 3440 Halliday Avenue St. Louis, MO 63118 Tom Archer, President 314-664-6360 www.secondwindstl.org Nebraska New Hearts Transplant Support Group 8509 S. 46th Street Omaha, NE 68157 Annette Fumagalli 402-734-5749 New Hampshire Pre and Post Transplant Support Group Concord Hospital 250 Pleasant Street, Room 5A Concord, NH 603-224-7121 concordtxgrp@yahoo.com Pre and Post Transplant Support Group c/o Southern New Hampshire Medical Center Nashua, NH Ron Rioux 603-889-1775 tx_support@hotmail.com New Jersey Lung Transplant Support Group (Pre- and Post-) St. Clare's Dover Campus 400 West Blackwell Street Dover, NJ 07801 Carmela Thomas, RRT 973-989-3128, option 2 Kidney/Pancreas Pre- and Post-Transplant Support Group Robert Wood Johnson University Hospital One Robert Wood Johnson Place New Brunswick, NJ 08903 Augusto J. da Fonseca, MSW,LCSW 732-235-8987 Cape Atlantic Support Group Mary Ellen Sammons 609-624-0529 New Jersey Transplant Association Inc. Donor Families and Recipients 841 Mountain Avenue Springfield, NJ 07081 www.njtransplant.org Second Chance Heart Support Group, Inc. Robert Wood Johnson University Hospital 609-799-1498 http://geocities.com/schtgi raharbourt@aol.com Central Jersey Transplant Lifeline Support Group Riverview Medical Center Red Bank, New Jersey Virginia O'Keefe New Mexico Liver Support Group USC University Hospital 1500 San Pablo St. Los Angeles CA, 90033 323-442-9626 Organ Transplant Awareness Program P.O. Box 37217 Albuquerque, NM 87176 505-877-1332 saiuto@aol.com Santa Fe Area Transplant Support Group 6353 Casas de Milagros Santa Fe, NM 87507 505-438-0729 apapmtz@att.net Southwest Kidney Support Group P.O. Box 1784 Farmington, NM 87499 505-334-0624 rwasson@sjcounty.net Nevada Champions of Organ Sharing (COS) Las Vegas, NV Jerry Prose 702-234-3699 giftoflife03@yahoo.com www.COSNV.org Living with Kidney Disease 9509 Salem Hills Court Las Vegas, NV 702-419-2438 kidneykid@cox.net New York The Recanati/Miller Transplantation Institute The Mount Sinai Medical Center One Gustave L. Levy Place NY, NY 10029 Entrance on 1468 Madison Ave. ( 100th St. and Madison Ave.) Guggenheim Pavillion Floor: 9 Center, Patient Lounge 212-241-8035 Lung Transplant Educational Support Group Columbia Presbyterian Medical Center 622 West 168th Street New York, NY 10032 Phyllis Sachs, LCSW 212-305-6266 Latino Organization for Liver Awareness (L.O.L.A.) New York, NY Debbie Vega 718-892-8697 http://www.lola-national.org/ Transplant Awareness Organization (TAO) Rochester, NY David Johnson 888-664-1463 membership@tao-rochester.org www.tao-rochester.org Transplant Support Group of Western New York 5605 Genesee Street Lancaster, NY 14086-9793 Michael J. Martino 716-685-4799 mmar1@juno.com www.tsgwny.org Children's Liver Alliance (Biliary Atresia and Liver Transplant Network) 3835 Richmond Avenue, Box 190 Staten Island, NY 10312 718-987-6200 livers4kids@earthlink.net Transplants Save Lives, Inc. Support Group (serving Rockland and Orange Counties) P. O. Box 516 Nanuet, NY 10954 newheart93@aol.com Transplant Recipients International Organization (TRIO) Long Island Chapter P.O. Box 81 Garden City, NY 11530 516-798-8411 www.litrio.com Transplant Recipients International Organization (TRIO) Manhattan Chapter PO Box 122, Throggs Neck Station Bronx, NY 10465 718-597-5619 TSO (Transplant Support Organization) 1154 Webster Avenue New Rochelle, NY 10804 tso97@optonline.net www.transplantsupport.org TSO of Staten Island 22 Ocean Road Staten Island, NY 10308 718-317-8073 dolsen@si.rr.com www.transplantsupport.org/staten.html Transplant Awareness Group (TAG) P.O. Box 2126 Syracuse, NY 13220 Doug Sprague 315-699-1920 Dsprague@eastwoodlitho.com www.Tagcny.org North Carolina Second Wind Lung Transplant Association, Inc. 2509 Old NC 10 Hillsborough, NC 27278 Kathryn Flynn, Vice President (919) 732-0851 (888) 855-9463 www.2ndwind.org sarika@mindspring.com The Newhearts Carolinas Medical Center P.O. Box 32861 Charlotte, NC 28232 Cherie Cone, MSW 800-562-5752 Lung Transplant Support Group UNC Hospitals 101 Manning Drive Chapel Hill, NC 27514 Laurie McDonald, LCSW 919-966-6341 lmcdonal@unch.unc.edu Transplant Recipients International Organization (TRIO) Eastern Carolina (Goldsboro) Chapter 4664 Leary Mills Road Vanceboro, NC 28586 252-746-3567 Transplant Recipients International Organization (TRIO) Triangle (Raleigh, Durham, Chapel Hill) Chapter 9413 Northfield Court Raleigh, NC 27607 919-846-5287 Transplant Recipients International Organization (TRIO) State of Franklin Chapter (serving NC, TN, and VA) 208 Holston Drive Weber City, VA 24290 540-386-3705 North Dakota MeritCare Medical Center MeritCare Kidney Services - Transplant Office 736 N. Broadway Fargo, ND 58122 701-234-6715 www.meritcare.com Ohio Buckeye GIFT - Giving Inspiration for Transplantation Lifeline of Ohio 770 Kinnear Road, Suite 200 Columbus, OH 43212 East - Kathy Warhola 740-439-1602 Central - Lauren Fitting 800-525-5667 Ext. 333 www.lifelineofohio.org Lung Transplant Support Group 770 Kinnear Road Columbus, OH 43212 614-293-5822 cahill-1@medctr.osu.edu Transplant Recipients International Organization (TRIO) Akron-Canton Chapter 1529 19th St. NE Canton, OH 44714 330-453-8214 http://home.roadrunner.com/~trioakcan Transplant Recipients International Organization (TRIO) Mahoning Valley Chapter P.O. Box 3484 Youngstown, OH 44513 330-872-7489 Transplant Recipients International Organization (TRIO) Miami Valley Chapter 4808 Barnhart Ave. Dayton, OH 45432 937-258-0740 Transplant Recipients International Organization (TRIO) Mid-Ohio Chapter 82 New Street, #1114 Greenwich, OH 44837-1056 800-421-7252 Transplant Recipients International Organization (TRIO) Renaissance (Toledo) Chapter 1535 Holland Road, Suite C Maumee, OH 43537 419-882-0048 Transplant Recipients International Organization (TRIO) Greater Cleveland Chapter PO Box 93163 Cleveland, OH 44101-5163 440-473-8979 Change of Heart Inc. 2602 Canterbury Ave. Cincinnati, OH 45237 513-631-5017 burkes@fuse.net Oklahoma Transplant Recipients International Organization (TRIO) Oklahoma Chapter 615 W. Symmes Norman, OK 73069 405-329-4099 Oregon Oregon Pulmonary Fibrosis/Lung Transplant Support Group Tualitan, OR Sandy Metheany 503-829-5253 Pennsylvania MOST (Multi-Organ Support Team) (meets monthly at Gift of Life Donor Program office) 401 N 3rd Street Philadelphia, PA Jim Gleason 609-877-4493 York Area Transplant Support Group Apple Hill Medical Center 25 Monument Road, Suite 193 York, PA 17403 Tom Wolf or Abel Santiago Jr. 717 741-9158 717 792-1714 Gift of Life Support Group - Lancaster Area Judy Loeb (717) 299-3877 Second Chance Heart Support Group, Inc. Hospital of University of Pennsylvania Hahnemann University Hospital, Tenet Temple University Hospital Robert Wood Johnson University Hospital 609-799-1498 http://geocities.com/schtgi raharbourt@aol.com Lehigh Valley Transplant Support Group Linda McGovern 610-402-8506 NE PA Transplant Support Group (Stroudsburg area) Howard Kindred 570-223-2833 www.nepatsg.org office@nepatsg.org Penn State Transplant Support Group (formerly Central PA Transplant Support Group) Ann MacLaughlin 717-531-6316 Transplant Recipients International Organization (TRIO) Keystone Country Chapter Rd. #1, Box 579 Altoona, PA 16601 814-674-8103 Transplant Recipients International Organization (TRIO) Philadelphia Chapter 407 N. Swarthmore Avenue Swarthmore, PA 19081 215-963-0482 ext. 143 Transplant Recipients International Organization (TRIO) Pittsburgh Chapter 200 Lothrop Street Pittsburgh, PA 15213 1-877-647-3439 trio@trio-pittsburgh.org National Kidney Foundation of Western Pennsylvania Robb Wilson 412-823-5630 robbw81@yahoo.com Rhode Island Transplant Recipients International Organization (TRIO) New England Chapter (serving CT, ME, MA, NH, RI and VT) 44 Ellison Road Newton, MA 02459 617-266-9559 Tennessee New Heart Society of East Tennessee Knoxville, TN Jerry Barnfield Transplant Support Group The University of Tennessee Medical Center 1924 Alcoa Highway Knoxville, TN Debra Winston, BSW Transplant Support Group National Kidney Foundation of East Tennessee Knoxville, TN Danae Miley, Patient Services Coordinator 865-688-5481 Transplant Recipients International Organization (TRIO) State of Franklin Chapter (serving NC, TN and VA) 208 Holston Drive Weber City, VA 24290 540-386-3705 Texas Living Gift Support Group Medical City Dallas Transplant Center 7777 Forest Lane, Building C-750 Dallas, TX 75230 (972) 566-4689 The Helping Hearts The Methodist Hospital 6565 Fannin Houston, TX 713-441-5451 www.thehelpinghearts.org Heart, Lung and LVAD Weekly Support Group The Methodist Hospital 6565 Fannin Houston, TX 713-441-5451 Heart Exchange Support Group, Inc. 6720 Bertner Ave., 4-129 Houston, TX 77030 (832) 355-3659 www.heartexchange.info support@heartexchange.info Liver Support Group Central Texas Regional Blood and Tissue Center 4300 North Lamar Blvd Austin, Texas 78756 (512)451-2222 North Texas Collin Area Transplant Support 130 S. Central Expressway McKinney, Texas 75070 Sherri Williams 972-838-6320 West Texas Transplant Support Group c/o University Medical Center 602 Indiana Avenue Lubbock, TX 79415 806-761-0710 aduemer@teamumc.com The Mickey Mantle Foundation Dallas, TX 800-477-MICK (6425) 214-987-7977 www.transweb.org/mantle/mantle.html Transplant Recipients International Organization (TRIO) El Paso Chapter 7369 Luz de Lumbre El Paso, TX 7991 Transplant Recipients International Organization (TRIO) Texas Panhandle Chapter PO Box 58 Plainview, TX 79073 Dave Courtney 866-7069828 Virginia Kidney Transplant Support Group Henrico Doctors' Hospital Richmond, VA 877-626-4581 804-289-4941 Kidney Transplant as a Treatment Option Kidney recipients and potential donors Henrico Doctors' Hospital Richmond, VA 877-626-4581 804-289-4941 Transplant Trekkers Walking Group Henrico Doctors' Hospital Richmond, VA 877-626-4581 804-289-4941 Culpeper Transplant Group 207 Sunset Lane Culpeper, VA 22701 Sheila and Lanny Horton 540-825-4815 Heart/Lung Transplant Support Group University of Virginia Health System P.O. Box 800 191 Charlottesville, VA 22908 Bill Potts, MSW, CSAC 800-257-0757 wmp8h@virginia.edu Kidney and Liver Transplant Support Group Medical College of Virginia, Hume-Lee Transplant Center 1200 E. Marshall Street Richmond, VA 23298 Shelia Bullock 804-828-5445 Kidney Transplant Support Group Henrico Doctor's Hospital, VA Transplant Center 1602 Skipwith Road Richmond, VA 23229 Gigi Spicer 804-289-4941 TLC Transplants Living to Care Lynchburg General 215 Chadwick Drive Lynchburg, VA 24502 www.lynchburg.net/community/tlc/home.htm The Mended Hearts, Inc. 7203 Poplar Street Annandale, VA 22003 John Braddon 703-941-8500 http://mendedhearts200.info/ jbraddon@cox.net American Lung Association South Atlantic Regional Center 9737 Main Street Fairfax, VA 22031 703-591-6504 County of Fairfax County Virginia Commission on Organ and Tissue Donation and Transplantation Department of Health 10777 Main Street, Suite 203 Fairfax, VA 22030-6903 703-246-2485 American Lung Association of Northern Virginia 9735 Main Street Fairfax, VA 22031 703-591-4131 In Loving Memory 1416 Green Run Lane Reston, VA 20190 InLvMemory@aol.com Transplant Recipients International Organization (TRIO) Nation's Capital Area Chapter P.O. Box 7633 Arlington, VA 22207-7633 703-920-TRIO 703-920-8746 tai01@aol.com superday@aol.com Transplant Support Groups Inova Fairfax Hospital 3300 Gallows Road Falls Church, VA 22046 703-698-3203 PediaHope Inc. PO Box 242 Great Falls, VA 22066 703-757-HOPE 703-757-4673 daisy@pop.erols.com or bwells@intrepid.net Marcelino Pan y Vino Inc. St. Anthony's Catholic Church 3305 Glen Carlyn Road Falls Church, VA 22041 Fr. Jose Eugenio Hoyos 703-845-5757 Transplant Recipients International Organization (TRIO) State of Franklin Chapter (serving NC, TN, and VA) 208 Holston Drive Weber City, VA 24290 540-386-3705 Washington Transplant Recipients International Organization (TRIO) Cascade Chapter 10847 Rustic Road S Seattle, WA 98178 206-772-0515 Lung Transplant Support Group University of Washington Medical Center Seattle, WA Angela Wagner, MSW 206-598-2676 Transplant Caregivers Support Group University of Washington Medical Center Seattle, WA Angela Wagner, MSW 206-598-2676 Wisconsin Kids With Heart National Association for Children's Heart Disorders 1578 Careful Drive Green Bay, WI 54304-2941 1-800-538-5390 michelle@kidswithheart.org www.kidswithheart.org UW Lung Transplant Support Group - A Breath of Fresh Air Khanh Oberley 608-219-9328 Heart Transplant Support Group University of Wisconsin Hospitals and Clinics 600 Highland Avenue Madison, WI 53792 608-262-8915 Liver and Kidney Disease Support Group Froedtert Memorial Lutheran Hospital, West-Roe Auditorium 9200 W. Wisconsin Avenue Milwaukee, WI 53226 414-259-2839 South Milwaukee Transplant Support Group St. Luke's Medical Center 2900 West Oklahoma Avenue Milwaukee, WI 53215 414-649-6125 North East Transplant Support (NETS) St. Elizabeth's Hospital Appleton, WI Linda Ourada 920-731-8845 Central Wisconsin Area Second Chance for Life Marshfield, WI Leah Breu, RN 715-389-3677 www.secondchanceforlife.org Froedert Support Group 9200 W. Wisconsin Ave., Conference Room E, Family Center Milwaukee, WI 414-805-3666 800-272-3666 www.froedtert.com/HealthResources/ClassesAndEvents/SupportGroups St. Luke's Support Group Milwaukee, WI 414-646-5410 http://www.aurorahealthcare.org/services/transplant/additional-support.asp Coulee Region Transplant Support Group Franciscan Skemp Healthcare Lower level conference room of Franciscan Skemp’s Onalaska Clinic, 191 Theater Road Onalaska, WI 608-782-2560 Vernon Memorial Hospital Heart Center Support Group Viroqua, WI 608-637-4497 www.vmh.org/PAGES/supportgroups.html All States American Liver Foundation 1425 Pompton Avenue Cedar Grove, NJ 07009 800-223-0179 www.liverfoundation.org American Heart Association 7272 Greenville Avenue Dallas, TX 75231-4596 800-AHA-USA1 800-242-8721 www.americanheart.org National Kidney Foundation 30 E. 33rd Street, 11th Floor New York, NY 10016 800-622-9010 212-889-2210 www.kidney.org Renal Support Network 1311 N. Maryland Ave. Glendale, CA 91207 Lori Hartwell, President and Founder (866) 903-1728 www.rsnhope.org Second Wind Lung Transplant Association, Inc. Kathryn Flynn, Vice President 2509 Old NC 10 Hillsborough, NC 27278 888-855-9463 919-732-0851 www.2ndwind.org Alliance for Donation Transplantation Awareness and Support (ADTAS) Kidney, Pancreas and Liver Transplant Support Group http://groups.google.com/group/Kidney-Liver-Pancreas-Support-Group Liver Families International, online support group for families whose lives have been touched by pediatric liver disease and transplant www.liverfamilies.net The Compassionate Friends, Inc. www.compassionatefriends.org Liver Transplant and Hepatitis C Online Support http://forums.delphiforums.com/livertransplant/start Heart-Lung Transplant Support Group heartlungtransplantsupportgroup@groups.msn.com Pancreatitis Online Support Group www.thepancreatitisplace.org Cirrhosis Online Support Group http://www.mdjunction.com/cirrhosis TransplantBuddies.org http://transplantbuddies.org American Association of Kidney Patients Roberta Wager, RN, MSN, AAKP President 800-749-2257 rbnet1@earthlink.net		Listen to others in similar situations. Get a feeling of security and belonging. Learn about transplant-related issues. Get help in dealing with emotions and stress. Share helpful information with other patients. Learn more about support groups and other organizations.